Several years ago, a therapist suggested that I write messages to myself on post-it notes, and put them on my mirror. These photos have become a thread in the tapestry of my online life, but I have never shared what the notes mean to me. In this blog series, I will share a handful of those moments - in hopes that it will provide encouragement to someone out there.
“You know, Amy… At some point, you just have to be realistic about your condition.”
This was the feedback I received a couple years ago from a neurologist who was seeing me for my hydrocephalus. I’m sure she meant well. Actually, she might have even been trying to encourage me -- by lowering my admittedly very high expectations.
But here’s the deal.
I’m not looking to “be realistic”.
I aim to be extraordinary.
Every day I work to discover the things that make my experience and impact in life more meaningful.
I may not have the skills and knowledge to find a cure for hydrocephalus. However, I do have the ability to support the incredible humans who are working every day on new solutions.
I am living every day to the fullest of my abilities, and I continually seek a better understanding of the things that are in my control.
I do these things with some very committed and likeminded individuals.
My inner circle is small, but it is mighty.
Together we face forward, staying focused on what we can impact through perseverance and education.
It’s why I use the hashtag #we in my posts.
WE are doing this together.
WE are going to live and love between the madness.
WE are going to help the world understand the severity of hydrocephalus, and the need for better answers.
WE are not going to settle for being “realistic”.
WE are going to make an impact.
for aron, who chooses to catch me, and absolutely refuses to waver. #we.
My name is Amy but friends and family call me Am. I am a lover of dogs, good whiskey, and strength training. I'm a brain surgery survivor (x29), a fiddle player, a construction designer, and a boxing enthusiast. I have six real siblings, and five fake brothers. I love deeply, and consider my close friends to be family.