“What are you thinking about, Am?”
I guess I must have gotten quiet, but the question brought me back to the present moment. Aron is one of the only people who has seen the day-to-day, week-to-week battle of the last year and a half. As my strength coach, he’s had to endure the past few brain surgeries and recoveries almost as if he was going through them himself—and it’s been a rocky road. And as one of my closest friends, he also knows that when I don’t say anything, I’m probably thinking about something. The monkey mind rarely stops thinking. So, I looked up at him (upside down) and answered. “I didn’t lose any strength.” Those words are heavier than all the pounds of weight loaded on the barbell I just lifted. As I laid on my back and let my brain unwind, I thought about how hard it was to get back to this point. The nights I couldn’t sleep more than a few hours. The days when I could hardly move because of the pain. The times we lifted weights with a giant ice pack ace bandaged to my torso. Dose after dose of anti-nausea medication. The many times I’ve passed out. Rep after rep of weight lifted off the ground—a symbolic tribute to the promise that I will stay in the arena. Day after day of stringing little victories together until we can declare that I am finally healed from the latest greatest trip to the operating room. All of it is part of this crazy, excruciating, confusing, and beautiful lesson I’m learning… that I am living proof that you can find peace in the midst of chaos and catastrophe. “No Am… you’re stronger than you were. We are stronger than we were.” Aron, you’re right. We are stronger. I bury myself in this constant drive for progress, obsessing over all the little things and losing sight of the big picture. I need to zoom out and look at the journey through a different lens, recognizing that I’m making it. We’re making it. As it always is, the physical recovery from the surgeries I had last year (May, September, and October 2018) has been a roller coaster. If you’ve ever had brain surgery, I know you understand this. But truly… if you’ve ever had ANY type of surgery – let alone back-to-back-to-back surgeries – you get it. The effects that the anesthesia alone leaves on your body can take months to correct. The biggest struggle I’ve experienced in this recovery period has been extreme nausea every morning. Naturally, we’ve assumed that this was an issue with the drainage of my shunt – either too much or too little. We’re about four months into figuring out a shunt setting and combination of anti-nausea medications to get this under control. My neurosurgeon has adjusted my shunt setting a few times, and my primary care doctor and pain management specialist are involved in finding the right combo of meds. It’s a constant work in progress – we rejoice on the days when it seems even a tiny bit better, and plough through the tough days when it feels like it will never end. As my friend and fellow hydro warrior Bryant always reminds me, “Chin up, eyes forward.” Mentally and emotionally, I am doing well. I have created a routine in which I can regularly have a peaceful couple of hours to myself in the morning, and it has helped me immensely. Between my career, my time in the gym, and the fact that I live with two of my siblings (which is amazing!) I am around people all day long. I decided about a year ago that I would get up earlier every day in order to have some quiet time and a routine time to study, pray, and write. I’ve grown to love this time, and it’s not hard to wake up early any more. As we near the end of the first quarter of 2019, I’m excited about the plans and goals I have for this year. I’ve got some projects coming up that will stretch my comfort and challenge me mentally. Every day is a new opportunity to grow and learn, connect with people, and be influenced by the good things around me. God has truly blessed me and kept me safe through all the insanity swirling through my world the past few years—and I am prepared to move forward as called. We’re only going to get stronger. We don’t go backwards. It’s like riding a bicycle downhill without brakes. We can pedal backwards, but we keep rolling forward. Let’s do that. #we. for Aron - Love, Monkey
4 Comments
Grace
3/17/2019 04:18:20 pm
This is what I needed to see today. I have been battling the fact that hydrocephalus rules my world. I have wanted to give up lately but you make me realize I can’t give up. Thank you Amy
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amy
3/18/2019 08:04:04 pm
Thank you, Grace! I am here, cheering you on. You are so strong.
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6/5/2023 11:42:46 pm
Since you mentioned you're running TrueNAS Core-13.0-U4, you can check if there are any updates available by going to the "System" menu and selecting "Update." If an update is available, you can follow the instructions to install it.
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If the alert is not being removed after following these steps, it's possible that there is a bug or a glitch in the system. In that case, you may need to update your TrueNAS version to the latest available version, as newer releases often include bug fixes and improvements.
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AuthorMy name is Amy but friends and family call me Am. I am a lover of dogs, good whiskey, and strength training. I'm a brain surgery survivor (x31), a fiddle player, a construction designer, and a boxing enthusiast. I have six real siblings, and five fake brothers. I love deeply, and consider my close friends to be family. Archives
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