Last month I had my #13 and #14th hydrocephalus related surgeries. Nine of these 14 surgeries have been since 2012, and every one of them have come with unique circumstances and challenges. Even though my husband and I have always tried to take them in stride, we make a vow to change or learn one thing each time that might make the process a little bit easier. Some of these things have been really practical, and other things are simply for comfort. We want to share some of our routines with you all, in hopes that they might help anyone else out there who is dealing with a lot of hospital stays and surgeries.
Live and love between the madness.
Here’s to the relentless pursuit of everything that’s important.
Stay strong, my warriors.
1/15/2016 12:07:35 pm
I really love this routines that ya'll have developed. I really like the last point that you made about have one or two people that you can be 100% real with. Few people are on this journey and it is EXTREMELY helpful in having one or two people that you can talk with and be real with, telling them about your fears, emotions and how you are doing physically.
1/17/2016 01:21:50 pm
Absolutely. Thanks for reading!
1/20/2016 10:34:16 pm
Hi Amy, I went to school with Clifton. I've been following your story from a far and just want to commend you on your optimism and strength. My mother had 3 brain surgeries 5 years ago and it was so hard on her and our family. I can't imagine what you've been through. You're obviously a fighter! I'm so proud of Clifton, seeing the man and husband he has grown into to. You are both so blessed to share the love that's so easily seen and felt. Sending prayers for love and light, health and healing. God bless you both! Love, Melissa
1/21/2016 06:55:34 pm
Melissa, Thank you so much for following our journey. Your words are so sweet, and mean a lot to us.
1/21/2016 06:17:53 pm
1/21/2016 06:57:26 pm
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My name is Amy but friends and family call me Am. I am a lover of dogs, good whiskey, and strength training. I'm a brain surgery survivor (x31), a fiddle player, a construction designer, and a boxing enthusiast. I have six real siblings, and five fake brothers. I love deeply, and consider my close friends to be family.